Subject: More time at home.

Saturday, April 4, 1998

Brian's website:   http://www-d0.fnal.gov/~hanlet/Brian/brian.html

Dear Friends and Family,

Brian has been home 10 days now.  We had all expected him to feel better and
better everyday, but this has not happened.  He continues to be very sick.  He
tries, but eating is very difficult.  He has managed to keep down a few ounces
of Carnation Breakfast and some Gatorade the last 3 days.  He did not vomit
yesterday, but vomited again early this morning.  Sara and Stan are trying to
get him to walk more each day.  He is weak and feels awful.  He does not feel
like playing---even when Gareth comes over.  He wakes up at night screams and
then falls back to sleep.  He is sad and constantly afraid that he'll vomit.

Last Wednesday when the evaluation tests were done, an error was made and the
technicians failed to CTSCAN his head.  They only did his chest and abdomen.
Consequently, the doctors do not have all the information they need prior to
resuming chemotherapy; therefore, chemo has been delayed another week--April
13th.  If he was feeling good and enjoying his time at home, this would be
good news.  But everyone wants to move forward with his treatments.  The
CTSCAN of his head will be done on Wed. when they do the bone scan at UCSF.

We will have a family Easter egg hunt this Sunday.  Brian is not feeling good,
but we hope to be able to distract and entertain him for a little while.  He
has been asking for an Easter egg hunt.  Gareth will join the family and come
play with Brian.

Please pray that Brian is able to relax and enjoy some of this time at home.
Pray that he is able to eat and stop vomiting.

Love,
Susan